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Nutritional and metabolic disorders, Guidance

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Using haem arginate (human hemin) in acute porphyria attacks

21 June 2022Understanding when and how to use haem arginate can help individuals at risk of acute neurovisceral attacks, which though uncommon may be life threatening.

Prescribing in lactose intolerance and how to identify lactose free medicines

17 February 2022Why lactose in medicines is important for healthcare professionals to consider, and how to check lactose content and identify lactose free medicines.

Making safe medicine choices during general anaesthesia and surgery in acute porphyria

26 August 2021Medicines listed as safe should preferably be used. However in a life-threatening situation no drug should be withheld from a patient with porphyria.

Safety in Lactation: Minerals

5 November 2020Maternal mineral supplements pose no risk to breastfed infants when taken in normal doses, although their use should be unnecessary unless the mother’s nutritional status…

Safety in Lactation: Fluids and electrolytes

23 September 2020Oral and intravenous products for correcting fluid and electrolyte imbalance will present no risk to a breastfeeding infant as they are normally present in milk.…

Safety in Lactation: Metabolic disorders

18 September 2020These drugs are used for a variety of metabolic conditions, most of which are rare, and therefore give very limited opportunity to assess their impact…

Medicines that are considered safe for use in the acute porphyrias

29 May 2020The UK Porphyria Medicines Information Service (UKPMIS) and Cardiff Porphyria Service produce a list of medicines that are considered to be safe for use in…

What is the most suitable treatment for acne in a person with acute porphyria?

10 January 2020Topical (applied to the skin) treatments for acne are considered to be safer than oral treatments in people with an acute form of porphyria, provided…

What are the restrictions on prescribing for patients with non-acute porphyria?

20 December 2019Non-acute porphyrias include congenital erythropoietic porphyria, erythropoietic protoporphyria and porphyria cutanea tarda. If a person has an unequivocal diagnosis of congenital erythropoietic porphyria or erythropoietic…

What advice should be given to patients with porphyria who intend to travel?

20 December 2019Most travel vaccines are safe in the acute porphyrias, but there has been an unpublished report of an acute porphyria attack following yellow fever vaccination.…